I’m hoping to use this blog to connect with others who share a similar situation, to keep family and friends updated, and as a journal for my daughter.

This is really hard

This is a tough post for me to write. It is very hard for me to be vulnerable or admit when I'm feeling weak. The past few weeks have...

I wrote this a little over a week ago, but I'm just now getting around to posting it. Look what came in the mail. My packet from...

After my dedicated weekly calls to Stanford I finally have a date to finish up my evaluation. My insurance has authorized the transplant...

It’s very possible that I’m not a very patient person. I decided to call Stanford last Monday to get an update on my case. Boy, am I...

In the last month it has come to my attention that adoption and transplants have quite a bit in common. They both require paperwork,...

I’m going to be very honest about how I feel right now. I’m really struggling today. Having this terrible cough and now sinus infection...

To be honest, this week has been awful. I usually describe my days by saying its been a good day, meaning I felt well enough to shower,...

On October 31st, Levi took our daughter, Zoe trick or treating while I stayed home and passed out candy. Zoe finished trick or treating...

I wanted to follow up from my last post about my stats. When I try using oxygen, my oxygen saturation does not increase and I get a...

Today I had my cardiopulmonary stress test at 1:00pm. I arrived on time and waited to be called back. The techs started me out with some...