I’m hoping to use this blog to connect with others who share a similar situation, to keep family and friends updated, and as a journal for my daughter.

Another Diagnosis

In keeping up the status quo, I've been given another diagnosis. Go me! Let me start at the beginning. On October 27th was my 40th...

When I look over the past 3 years of my life I think about all the helpers that were involved. If I tried to make a list of names of all...