I’m hoping to use this blog to connect with others who share a similar situation, to keep family and friends updated, and as a journal for my daughter.

Follow up

I wanted to follow up from my last post about my stats. When I try using oxygen, my oxygen saturation does not increase and I get a...

Today I had my cardiopulmonary stress test at 1:00pm. I arrived on time and waited to be called back. The techs started me out with some...

Sunset the evening of my dad's funeral I’ve always believed in miracles. I wasn’t suppose to live past nine months old. My whole life...

Yesterday, Monday morning I received a call from my cardiologist's office telling me that my doctor had contacted Stanford University and...

The morning of my appointment to meet with my cardiologist to discuss my options, fear overcame me. I told my husband that I felt that I...

Here’s the deal...I’ve decided to start a blog to share my journey of how I got to where I am today and where I’m going from here. I have...